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“I feel like there is hope, great hope, more hope now than ever before.” –Peggy Willocks, Diagnosed 14 years
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If you have recently been diagnosed with Parkinson’s disease (PD) understanding the disease, and learning about the resources available to you, are good first steps.
What Are the Questions I Should Ask ?
- What information is available about the treatment from pre-clinical Pre-clinicalTesting of investigational drugs or treatments in the laboratory or in animals before trials in humans are carried out. studies?
- What are the known side effects Side Effects Any undesired actions or effects of a drug or treatment. Negative or adverse effects may include such symptoms as headache, nausea and upset stomach. In some cases, side-effects may cause more severe medical problems. and what is the risk of new side effects?
- What tests will I be required to undergo?
- Will I have to stop taking my current medications?
- How will the study staff work with my primary physician to keep him or her informed about my care?
- Can I drop out of the trial at any time?
- Will the results of this study be made known to me upon trial completion?
- What is the chance that I will receive a placebo? PlaceboAn inactive substance or procedure (often a pill, liquid, or powder) that has no biological effect. In clinical trials, experimental treatments are often compared with placebos to assess the treatment's effectiveness. In some studies, the participants will be assigned to a control group and will receive a placebo instead of an active drug or treatment.
- Will I be able to receive the treatment when the trial ends, even if I was in the placebo group?
- Will I be able to contact the study center if I have questions during the trial?
- Can I speak to other people who have participated in trials at this study center?
- How much time do I need to commit?
- Will I have to travel?
- Are there any costs associated with participating in this study?
- Will insurance cover the medical costs if they exist?
- Will I be reimbursed for any expenses that I incur while participating in the trial, e.g., parking, travel?
- Does the study include follow-up care?
You may download this list of questions here and bring it with you when you meet with the trial coordinator.
