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Participant Stories

“I participate because it is the right thing to do, for myself, for my children, and for the millions of people who have Parkinson’s disease.  Without participation there will be no cure.” –Mike, Diagnosed 7 years

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Recently Diagnosed with Parkinson's Disease?

If you have recently been diagnosed with Parkinson’s disease (PD) understanding the disease, and learning about the resources available to you, are good first steps.

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Educational Webinar

You may listen to this January 14, 2009 webinar online as well as via podcast:  please CLICK HERE.  

 

Participating in Parkinson's Clinical Research: The Key to Becoming an Informed Study Volunteer

Featuring Kenneth Getz, M.B.A., author of The Gift of Participation: A Guide to Making Informed Decisions About Volunteering for a Clinical Trial

PDtrials is pleased to announce its first educational webinar (web-based seminar) featuring a national expert who, on January 14th, presented and answered questions on Parkinson's clinical research.  We invite you to experience this webinar, whether you are deciding to participate in your first or fifteenth clinical study.

Ken Getz 2We welcomed Kenneth Getz, M.B.A., author of the book, The Gift of  Participation: A Guide to Making Informed Decisions About Volunteering for a Clinical Trial, as presenter.

Ken is the chairman of the Center for Information and Study on Clinical Research Participation (CISCRP), a nonprofit organization that he founded to educate and raise public awareness of the clinical research enterprise, and a Senior Research Fellow at the Tufts Center for the Study of Drug Development.  Ken is also the founder and former CEO of CenterWatch, a leading publisher in the clinical trials industry. A well-known speaker at conferences, symposia, universities and corporations, Ken has published over 100 articles and chapters in peer-review journals and books and  is on the editorial boards of Controlled Clinical Trials, Research Practitioner, and the Drug Information Journal and writes a bi-monthly column for Applied Clinical Trials.

Those who joined the live webinar were able to submit questions directly to Ken.  He answered as many as possible within the 45-minute Q & A period.  

This webinar will be available for viewing for one year on PDtrials.org, and will be removed from this site in January of 2010. 

 

Please CLICK HERE to experience the webinar again, or for the first time.