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Participant Stories

“I feel like there is hope, great hope, more hope now than ever before.” –Peggy Willocks, Diagnosed 14 years

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Recently Diagnosed with Parkinson's Disease?

If you have recently been diagnosed with Parkinson’s disease (PD) understanding the disease, and learning about the resources available to you, are good first steps.

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Steering Committee / Advisors / Partners


The PDtrials coalition is led by:

The Parkinson’s Disease Foundation (PDF)
PDF is a leading national presence in Parkinson's disease  Parkinson's DiseaseA chronic, slowly progressive disease of the nervous system characterized by the combination of tremor, rigidity, bradykinesia and stooped posture, among other symptoms. research, education and public advocacy. PDF is working for the nearly one million people in the US living with Parkinson's by funding promising scientific research and supporting people with Parkinson's, their families and caregivers through educational programs and support services.

In collaboration with other leading PD advocacy and research organizations including:

The Michael J. Fox Foundation (MJFF)
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease within the decade through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.

Parkinson’s Action Network (PAN)
PAN serves as the voice of Parkinson’s on numerous public policy issues affecting the Parkinson’s community, including NIH funding and research, Parkinson’s-specific programs at the Departments of Defense and Veteran’s Affairs, FDA drug approval issues, HHS programs (Medicare and Social Security), and the continuing struggle to achieve research freedom for stem cell research.

Parkinson Alliance
The Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson's disease.

American Parkinson Disease Association (APDA)
The APDA operates through a national system of chapters, volunteers who raise funds and awareness, and centers, staffed by healthcare professionals who provide direct patient and caregiver support.

Worldwide Education and Awareness for Movement Disorders (WE MOVE)
WE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them.

And is advised by:

National Institutes of Neurological Disorders and Stroke (NINDS)
The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

Parkinson Study Group (PSG)
The PSG is a non-profit, cooperative group of Parkinson's disease experts from medical centers in the United States and Canada who are dedicated to improving treatment for persons affected by Parkinson's disease.

The Parkinson’s Institute
The Parkinson’s Institute and Clinical  ClinicalDealing with or based on observation and treatment of people, as opposed to basic science carried out in the laboratory or in animals. Center is America’s only independent non-profit organization that provides basic and clinical research,  Clinical ResearchPatient-oriented research conducted with human participants (or on material of human origin such as tissues and specimens) for which an investigator directly interacts with human participants. This area of research includes: mechanisms of human disease, therapeutic interventions, clinical trials, or development of new technologies. clinical trials and a comprehensive movement disorder patient clinic for Parkinson’s disease and related neurological movement disorders, all under one roof.

Parkinson Pipeline Project (PPP)
The Parkinson Pipeline Project is a grassroots group of advocates whose goal is to provide the patient perspective in the treatment development process.  Through education, consultation, and participation with all stakeholders - including industry and the FDA - the Parkinson Pipeline Project hopes to increase clinical trial  Clinical Trial (Clinical Study)A scientific study involving human participants to determine the safety and efficacy of new therapies or new ways of using known treatments. participation and accelerate approved treatment options.

PDtrials regional and independent partners include:

PDplan4life
PDplan4 life is a website created by two committed people with Parkinson's (PWP) who use humor to share their personal challenges with and triumphs over PD to motivate and inspire other PWP to take control of and live well with this disease. Their message is simple: "Parkinson's is not a death sentence unless you choose to make it one."

Parkinson's Patients Support Groups, Inc. (PPSG)
PPSG is a non-profit organization that has been serving the community of Parkinson's patients, care-givers and their friends and families, in the San Francisco Bay Area and beyond, since 1981.

Northwest Parkinson's Foundation (NWPF)
NWPF is a non-profit organization established to improve quality of life for the Parkinson's disease community in the Northwestern United States .

Southeast Parkinson Disease Association (SEPDA)
SEPDA is a non-profit organization dedicated to increasing public awareness of PD, its effect on patients and families and the need for public support, based in Orlando , FL.

Capital Area Parkinson's Society (CAPS)
CAPS is based in the greater Austin and central Texas area, and provides those impacted by Parkinson's disease, many of whom may know very little about their disease, a forum in which to discuss their situation with others similarly afflicted.


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