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Participant Stories
“I participate because it is the right thing to do, for myself, for my children, and for the millions of people who have Parkinson’s disease. Without participation there will be no cure.” –Mike, Diagnosed 7 years
Recently Diagnosed with Parkinson's Disease?
If you have recently been diagnosed with Parkinson’s disease (PD) understanding the disease, and learning about the resources available to you, are good first steps.
Educational Resources
In addition to the information provided via this website, the PDtrials initiative offers print educational materials that may be helpful to you and others who wish to learn more about clinical research and/or consider participating in a trial. These materials include:
- Parkinson's Clinical Trials Bulletin. This bi-annual print bulletin lists trials that are actively seeking patient volunteers, providing a hard-copy version of the trials that are posted on www.PDtrials.org. You may download the most recent version of the Parkinson’s Clinical Trials Bulletin here.
- You Can Play a Part in Moving Parkinson's Research Forward. An introductory brochure on clinical research participation and PDtrials resources. You may download this brochure here.
- Getting Involved in Parkinson's Disease Clinical Research. This multi-page guide provides information on the importance of clinical research, and what questions to consider when deciding whether to participate in a study. You may download Getting Involved in Parkinson’s Disease Clinical Research here.
- Participating in Parkinson's Clinical Research: Questions to Ask. This extensive checklist provides a series of questions that will help you stay educated and informed throughout your clinical study experience. You may download this list of questions here.
If you would like to order multiple copies of these materials, please email us at info@pdtrials.org, call (800) 457-6676, or visit the Contact Us page for more information.
If you would like to receive regular updates on Parkinson's clinical research by mail or in our monthly email bulletins, please sign up here.
For further resources on Parkinson's, parkinsonisms, and clinical research, visit our Additional Resources page.
