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“I feel like there is hope, great hope, more hope now than ever before.” –Peggy Willocks, Diagnosed 14 years
Recently Diagnosed with Parkinson's Disease?
If you have recently been diagnosed with Parkinson’s disease (PD) understanding the disease, and learning about the resources available to you, are good first steps.
Investigation of Risk Factors for Early-Onset Parkinson's Disease
Official Study Title: Consortium On Risk for Early-Onset Parkinson's Disease Parkinson's DiseaseA chronic, slowly progressive disease of the nervous system characterized by the combination of tremor, rigidity, bradykinesia and stooped posture, among other symptoms. (CORE PD)
Sponsor: National Institute of Neurological Disorders and Stroke National Institute of Neurological Disorders and Stroke (NINDS)A branch of the National Institutes of Health whose research concentrates on the brain and conditions that result in brain function irregularities. The NINDS funds much of the research on Parkinson's disease. Internet address: http://www.ninds.nih.gov
(NINDS)
Clinicaltrials.gov ID: NCT00104585
Study ID: R01NS036630
Summary
The purpose of this study is to investigate genetic GeneticReferring to a condition that is caused by a person's genes (heredity). and environmental risk factors that increase the likelihood of developing Parkinson's disease at or before age 50. Parkinson's disease (PD) is a common brain disorder among people over 50. However, about 10 percent of people with PD are reported to develop symptoms at or before the age of 50. These people are said to have early-onset Parkinson's disease. Participation in the study involves a blood draw, answering questionnaires on family and medical history, and a neurological examination. In addition, participants may be contacted in the future and asked to participate in a more detailed interview. At that time, study investigators will also ask participants for permission to contact family members to invite them to participate in the study. Scientists hope this study will increase the current knowledge of PD and that the identification of factors that cause PD will lead to better diagnosis and treatment.
Study Phase
Not Applicable
What is a study phase?
Symptoms Addressed: Study does not address symptoms
Study does not address symptoms
Time Commitment
- Less than one day
- A one-hour visit at the study site. Participants may be contacted in the future for one additional visit.
Eligibility
- Minimum Age: 18
- Gender(s) Accepted: Either
Inclusion Criteria
- Age 18 and older
- People with Parkinson's whose symptoms began at or before age 50
Enrollment
Expected Enrollment: 800 (US)
Date Enrollment Began: Jul 01 2004
Last Updated Date: Feb 28 2005
Trial Post Date: Feb 28 2005
Website: http://clinicaltrials.gov/ct/show/NCT00104585?order=1
Primary Contacts and Locations
New York
- Helen Mejia-Santana, M.S
Columbia University
research@corepdstudy.org
Phone: 877-305-2438
New York, NY 10032
USA
Local Contacts and Locations
California
- Kathleen Comyns
Kcomyns@parkinsonsinstitute.org
Phone: (408) 542-5620
The Parkinson's Institute
Sunnyvale, CA 94089
USA
Connecticut
- Debbie Ruotolo
druotolo@mnimaging.com
Phone: 203-401-4366
New Haven, CT 06510
USA
Illinois
- Luci Blasucci
Lucia_M_Blasucci@rush.edu
Phone: 312-563-2900
Rush University Medical Center
Chicago, IL 60612
USA - Susan Silvio
Glenbrook Hospital
ssilvio@enh.org
Phone: (847) 657-5689
Glenview, IL 60026
USA
Maryland
- Melissa Gerstenhaber
Johns Hopkins Hospital
mgerste1@jhmi.edu
Phone: (410) 614-1242
Baltimore, MD 21287
USA
Minnesota
- Patricia Ede
Struthers Parkinson's Center
patriciaede@parknicollet.com
Phone: 952-993-2245
Golden Valley, MN 55427
USA
New York
- Helen Mejia-Santana
research@corepdstudy.org
Phone: 877-305-2438
Columbia University
New York, NY 10032
USA - Paul Soto
Beth Israel Medical Center
Phone: (212) 844-6053
New York, NY 10003
USA
Pennsylvania
- Dana Clay
cdana@mail.med.upenn.edu
Phone: (215) 829-7731
University of Pennsylvania
Philadelphia, PA 19104
USA
Rhode Island
- Meg Lannon
Neuro Health
mclannon@neurohealth.info
Phone: (401) 921-4245
Warwick, RI 02886
USA
Tennessee
- Brenda Pfeiffer
University of Tennessee Health Science Center
bpfeiffer@utmem.edu
Phone: (901) 271-5966
Memphis, TN 38136
USA
Wisconsin
- Pam Mundt
Marshfield Clinic
mundt.pamela@mcrf.mfldclin.edu
Phone: 715-387-5544
Marshfield, WI 54449
USA

















