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Participant Stories

“I feel like there is hope, great hope, more hope now than ever before.” –Peggy Willocks, Diagnosed 14 years

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Recently Diagnosed with Parkinson's Disease?

If you have recently been diagnosed with Parkinson’s disease (PD) understanding the disease, and learning about the resources available to you, are good first steps.

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Evaluation and Treatment of Nervous System Disorders that May Require Surgery

Official Study Title: Evaluation and Treatment of Neurosurgical Disorders
Sponsor: National Institute of Neurological Disorders and Stroke  National Institute of Neurological Disorders and Stroke (NINDS)A branch of the National Institutes of Health whose research concentrates on the brain and conditions that result in brain function irregularities. The NINDS funds much of the research on Parkinson's disease.  Parkinson's DiseaseA chronic, slowly progressive disease of the nervous system characterized by the combination of tremor, rigidity, bradykinesia and stooped posture, among other symptoms. Internet address: http://www.ninds.nih.gov (NINDS)
Clinicaltrials.gov ID: NCT00060541
Study ID: NCT00060541

Summary

This study will evaluate and treat participants with nervous system disorders, such as PD, who may benefit from surgery. Participants will undergo tests, receive expert care, and have surgery to treat their symptoms if needed. This study will help to train doctors at the National Institutes of Health  National Institutes of Health (NIH)The National Institutes of Health, a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research. Headquartered in Bethesda Maryland, it is composed of 27 Institutes and Centers and provides leadership and financial support to researchers in every state and throughout the world. Internet address: http://www.nih.gov. (NIH) and increase understanding of brain diseases.

Study Phase

Not Applicable
What is a study phase?

Symptoms Addressed: Movement Symptoms

Tremor,  TremorShaking or rhythmic movement, especially in the hands but in other parts of the body. Often occurs when at rest, such as in the RESTING TREMOR. Slowness of movement (bradykinesia)  BradykinesiaSlowness of movement. , Rigidity,  RigidityA symptom in which muscles feel stiff and display resistance to movement even when another person tries to move the affected part of the body. Balance

Time Commitment

  • Contact trial organizers

Eligibility

  • Minimum Age: 18
  • Gender(s) Accepted: Either

Inclusion Criteria

  • All ages are eligible; for participants under the age of 18, must have parent or guardian to give consent
  • Have a brain disorder, such as Parkinson's disease

Enrollment

Expected Enrollment: 600 (US)
Date Enrollment Began: May 05 2003
Last Updated Date: Nov 15 2004
Trial Post Date: Nov 15 2004
Website: http://clinicaltrials.gov/show/NCT00060541

Primary Contacts and Locations

Maryland

  • No Individual Specified — Patient Recruitment and Public Liaison Office
    prpl@mail.cc.nih.gov
    Phone: 800-411-1222
    National Institute of Neurological Disorders and Stroke (NINDS)
    9000 Rockville Pike
    Bethesda, MD 20892
    USA

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