Select Language:
EnglishEspañol
Adjust Text Size:
change font sizechange font sizechange font sizechange font sizechange font sizechange font size

Browse Clinical Trials


Join the Email List

Sign up for our email bulletin

Go

Participant Stories

“I participate because it is the right thing to do, for myself, for my children, and for the millions of people who have Parkinson’s disease.  Without participation there will be no cure.” –Mike, Diagnosed 7 years

Read More

Recently Diagnosed with Parkinson's Disease?

If you have recently been diagnosed with Parkinson’s disease (PD) understanding the disease, and learning about the resources available to you, are good first steps.

Learn More

Barriers to Mental Healthcare Utilization in Parkinson’s Disease (PD): A Brief Survey for People with PD

Official Study Title: Barriers to Mental Healthcare Utilization in Parkinson’s Disease (PD)
Sponsor: National Institute of Neurological Disorders and Stroke  National Institute of Neurological Disorders and Stroke (NINDS)A branch of the National Institutes of Health whose research concentrates on the brain and conditions that result in brain function irregularities. The NINDS funds much of the research on Parkinson's disease.  Parkinson's DiseaseA chronic, slowly progressive disease of the nervous system characterized by the combination of tremor, rigidity, bradykinesia and stooped posture, among other symptoms. Internet address: http://www.ninds.nih.gov (NIH/NINDS)
Clinicaltrials.gov ID:
Study ID: UMDNJ-Robert Wood Johnson Medical School IRB#  IRBA committee of physicians, statisticians, researchers, community advocates, and others chosen by an institution to initially approve and periodically review research projects involving human participants. Federal law requires this to ensure protection of participants’ safety, rights and welfare. 0220100120

Summary

Many people with Parkinson’s disease (PD) also experience depression or anxiety.  These psychiatric concerns negatively affect the course and management of PD, often leading to poor outcomes for both patients and their families. Despite these detrimental effects, psychiatric symptoms of PD are both underreported by individuals with PD, as well as under-recognized and under-treated by health care providers.

The primary focus of this study is to identify and describe barriers to mental healthcare utilization for people with PD. Secondary objectives include the assessment of attitudes and preferences regarding the need for mental health services in the PD community and the acceptability of telehealth interventions as a method for improving access and quality of care. In order to accomplish these aims, participants will be asked to fill out an anonymous survey which will take about 15 minutes to 30 minutes to complete. The information obtained from this study will be used to support future treatment development efforts (i.e., phone- and internet-based interventions, community based trainings with local providers) intended to improve access and quality of mental healthcare for people with PD. To the best of our knowledge, this is the first study to systematically examine barriers to mental healthcare utilization in PD in a national sample.

The survey may be completed online at https://www.surveymonkey.com/s/improvecare4pd. People who are unable to complete the survey online may call Dr. Roseanne Dobkin at (732) 235-4051 to complete the survey over the phone or to have a paper copy mailed to their home.

Study Phase

Not Applicable
What is a study phase?

Symptoms Addressed: Study does not address symptoms

Anxiety, Depression

Time Commitment

  • Less than one day
  • 15 minutes to 30 minutes on one day

Eligibility

  • Minimum Age: 18
  • Gender(s) Accepted: Either

Inclusion Criteria

  • Diagnosis of Parkinson’s disease
  • At least 18 years of age

A PAST HISTORY OF MENTAL HEALTH TREATMENT IS NOT REQUIRED. WE ARE INTERESTED IN RESPONSES FROM ALL PEOPLE WITH PD.

Exclusion Criteria

  • Less than 18 years of age 

Enrollment

Expected Enrollment: 999 (US)
Date Enrollment Began: Jun 2010
Date Enrollment Ends: Aug 2011
Last Updated Date: Jul 09 2010
Trial Post Date: Jul 09 2010
Website: https://www.surveymonkey.com/s/improvecare4pd

Primary Contacts and Locations

Idaho

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    ID
    USA

New Jersey

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    Piscataway, NJ 08854
    USA

Local Contacts and Locations

Alabama

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    AL
    USA

Arkansas

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    AR
    USA

Arizona

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    AZ
    USA

All States

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    All States
    USA

California

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    CA
    USA

Colorado

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    CO
    USA

Connecticut

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    CT
    USA

District Of Columbia

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    DC
    USA

Delaware

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    DE
    USA

Florida

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    FL
    USA

Georgia

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    GA
    USA

Hawaii

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    HI
    USA

Iowa

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    IA
    USA

Illinois

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    IL
    USA

Indiana

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    IN
    USA

Kansas

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    KS
    USA

Kentucky

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    KY
    USA

Louisiana

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    LA
    USA

Massachusetts

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    MA
    USA

Maine

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    ME
    USA

Michigan

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    MI
    USA

Minnesota

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    MN
    USA

Missouri

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    MO
    USA

Mississippi

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    MS
    USA

Montana

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    MT
    USA

North Carolina

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    NC
    USA

North Dakota

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    ND
    USA

Nebraska

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    NE
    USA

New Hampshire

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    NH
    USA

New Jersey

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    NJ
    USA

New Mexico

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    NM
    USA

Nevada

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    NV
    USA

New York

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    NY
    USA

Ohio

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    OH
    USA

Oklahoma

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    OK
    USA

Oregon

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    OR
    USA

Pennsylvania

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    PA
    USA

Rhode Island

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    RI
    USA

South Carolina

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    SC
    USA

South Dakota

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    SD
    USA

Tennessee

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    TN
    USA

Texas

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    TX
    USA

Utah

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    UT
    USA

Virginia

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    VA
    USA

Vermont

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    VT
    USA

Washington

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    WA
    USA

Wisconsin

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    WI
    USA

West Virginia

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    WV
    USA

Wyoming

  • Roseanne Dobkin, Ph.D.
    Robert Wood Johnson Medical School
    dobkinro@umdnj.edu
    Phone: (732) 235-4051
    WY
    USA

View All Locations and Contacts