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Participant Stories

“I participate because it is the right thing to do, for myself, for my children, and for the millions of people who have Parkinson’s disease.  Without participation there will be no cure.” –Mike, Diagnosed 7 years

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Recently Diagnosed with Parkinson's Disease?

If you have recently been diagnosed with Parkinson’s disease (PD) understanding the disease, and learning about the resources available to you, are good first steps.

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Diagnosis and History Study of People with Different Brain Conditions

Official Study Title: Diagnosis and History Study of Patients with Different Neurological Conditions
Sponsor: National Institute of Neurological Disorders and Stroke  National Institute of Neurological Disorders and Stroke (NINDS)A branch of the National Institutes of Health whose research concentrates on the brain and conditions that result in brain function irregularities. The NINDS funds much of the research on Parkinson's disease.  Parkinson's DiseaseA chronic, slowly progressive disease of the nervous system characterized by the combination of tremor, rigidity, bradykinesia and stooped posture, among other symptoms. Internet address: http://www.ninds.nih.gov (NINDS)
Clinicaltrials.gov ID: NCT00001367
Study ID: NCT00001367

Summary

The purpose of this trial is to diagnose and follow-up with patients who have disorders of movement control such as PD. This trial will study people with Parkinson's disease and other movement disorders. People who have an undiagnosed movement disorder will be included. Doctors at the National Institutes of Health  National Institutes of Health (NIH)The National Institutes of Health, a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research. Headquartered in Bethesda Maryland, it is composed of 27 Institutes and Centers and provides leadership and financial support to researchers in every state and throughout the world. Internet address: http://www.nih.gov. will work in cooperation with the participant's personal doctor to monitor the participant's condition. Participants will have routine laboratory tests and examinations. No experimental treatments will be used.

Study Phase

Not Applicable
What is a study phase?

Symptoms Addressed: Study does not address symptoms

Study does not address symptoms

Time Commitment

  • Contact trial organizers
  • not specified

Eligibility

  • Minimum Age: 5
  • Maximum Age: 100
  • Gender(s) Accepted: Either

Inclusion Criteria

  • Age 5 and older
  • Participants must have an identifiable neurological disorder such as PD, or a family history of neurological disorders
  • Have an undiagnosed movement control disorder

Enrollment

Expected Enrollment: 1500 (US)
Date Enrollment Began: Aug 1993
Date Enrollment Ends: Aug 1993
Last Updated Date: Sep 24 2008
Trial Post Date: Jul 13 2004
Website: http://www.clinicaltrials.gov/ct/show/NCT00001367?order=1

Primary Contacts and Locations

Maryland

  • Patient Recruitment and Public Liaison Office
    prpl@mail.cc.nih.gov
    Phone: 800-411-1222
    National Institute of Neurological Disorders and Stroke (NINDS)
    9000 Rockville Pike
    Bethesda, MD 20892
    USA